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Useful Links

This page provides an account of Useful Links to Organisations and Information within the Care Industry.

Partner Organisations

The Spinal Injuries Association (SIA)

www.spinal.co.uk

The Spinal Injuries Association (SIA) website and one of the most comprehensive Spinal Injury sites on the Net. Active Assistance works in partnership with the SIA to improve care standards and support people with a high level injury to secure NHS Funded Continuing Healthcare. Active Assistance has a regular article in Forward Magazine.

Aspire

www.aspire.org.uk

Aspire’s projects and services have a very simple goal – to provide the support needed to take those who use them from spinal injury to independence. Active Assistance supports Aspire’s work providing interim housing solutions for people with spinal cord injury.

The Ann Conroy Trust

www.theannconroytrust.org.uk

The Ann Conroy Trust offers support, education & research for sufferers of syringomyelia and associated conditions.

Transhouse

www.transhouse.info/

Transhouse is a registered charity for people with spinal cord injuries and other disabilities. We are able to provide each person with short-term accommodation and advocacy support while we help them to find and adapt suitable long-term accommodation in their chosen area. The charity has three properties that are able to accommodate up to ten people with spinal cord injuries and other disabilities at any one time. These properties, consisting of a house and two bungalows, are located in Oswestry Shropshire. Each of these properties is fully equipped for wheelchair users.

 

National Framework for NHS Continuing Healthcare

www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_103162

First Published in June 2007, the National Framework provided for the first time a common methodology for local NHS bodies (Primary Care Trusts) to assess patient needs. The Framework defines an assessment methodology using ‘Care Domains’ and is designed to help healthcare professionals establish whether an individual has a primary health need. This is the key factor in deciding whether someone qualifies for NHS Funded Care. The Framework was updated in July 2009.

Commentary and Advice for Local Authorities on The National Framework for NHS Continuing Healthcare and NHS-funded Nursing Care

www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_103162

Produced by the Association of Directors of Adult Social Services (ADASS) and the Local Government Association (LGA) in October 2007, this document gives their view on the National Framework soon after it was published. This is well worth reading, especially if you are currently funded through Social Services (including Direct Payments) and want to move to NHS Funded Care. In this document both organisations say that it is unlawful for Social Services to fund care for health needs, re-iterate the importance of the Coughlan Case in establishing a precident for SCI People and confirm that if someone is entitled to NHS funding it should be for both their health and social care needs.

Personal Health Budgets

www.dh.gov.uk/en/Healthcare/OurNHSourfuture/DH_090018

For some people the only problem with having your care funded by the NHS is the fact that you are unlikely to be able to directly employ your own staff. Personal Health Budgets may allow you to dio this and are being piloted in the Summer of 2010. This link takes you to the Personal Health Budgets page of the Dept of Health Website.

Spinal Injuries Association & Active Assistance Information Pack

www.activeassistance.com/clients/nhs_funding
This information pack was co produced by Active Assistance and SIA to help guide people through the NHS Continuing Healthcare Assessment process. Preparation for this assessment is critical.

Active Assistance and SIA Video Presentation

www.activeassistance.com/clients/nhs_funding
The Spinal Injuries Association and Active Assistance have co produced a video presentation to support our Information Pack.

 

Information & Associations

Back Up

Back Up is a national charity dedicated to providing opportunities for spinally injured and able bodied individuals to experience the buzz of outdoor activities together and so increase self belief, independence and motivation.

Spinalnet

Spinal cord injury healthcare information in one catch. This site is dedicated to sharing information on healthcare, day to day life issues, personal experiences and much more.

Muscular Dystrophy Campaign

The Muscular Dystrophy Campaign is the only UK charity focusing on all muscular dystrophies and allied disorders. It has pioneered the search for treatments and cures for over 40 years and provides practical, medical and emotional support to people affected by the condition.

Independent Living

The UK’s leading site for disabled and elderly people, carers and healthcare professionals.

MS Society

The MS Society is the UK’s largest charity for people affected by Multiple Sclerosis (MS) – about 85,000 people in the UK.

Scope

The disability organisation in England and Wales whose focus is people with cerebral palsy. Their aim is that disabled people achieve equality: a society in which they are as valued and have the same human and civil rights as everyone else.

Salisbury Spinal Injuries Trust

SSIT works to promote and protect the physical and mental health of people with spinal cord injuries particularly but not exclusively through the provision of equipment, to assist them with daily living skills and mobility.

Continuing Healthcare Campaign

Forum for people that are having trouble fighting the NHS for free nursing care which should be free at the point of need. This is the law set down by the Labour Government 1946/48 and it has not changed.

Dying Matters

Dying Matters is a coalition of 32,000 members across England and Wales which aims to help people talk more openly about dying, death and bereavement, and to make plans for the end of life.

 

Independent Living

The National Centre for Independent Living (NCIL)

This website is designed to be a resource on independent living and Direct Payments for disabled people and others working in the field.

Disabled Living Centres

A Disabled (or Independent) Living Centre (DLC) is a place where you can get free and ethical information and advice about products which can increase disabled or older people’s choices about how they live. At a DLC you can see and try out products and explore other solutions. Centres provide free information to people in person, by telephone, letter or email.

Disabled Living Foundation

As a national UK Charity it is our vision to provide the best possible choice for people who use equipment to live a more independent life. The site contains a huge amount of information and resources.

Disability Rights Commission

The Disability Rights Commission is an independent body, established by an Act of Parliament to eliminate discrimination against disabled people and promote equality of opportunity.

Finchale College

Finchale College is a Specialist Vocational College offering training and support for unemployed adults with a range of physical, mental and medical health issues and special needs.

Jasper’s Spinal Column

Steve was injured 20 years ago and his site talks about how he has coped and about his life today. Steve is an Active Assistance client.

 

Holidays & Respite

Calvert Trust

The Calvert Trust specialises in outdoor activities for disabled people.

Accessible Travel

Discover an exciting world of accessible holidays and travel for wheelchair users, slow walkers, mature travellers, their families and friends.

Good Access Guide

A unique directory of accessible leisure pursuits, holidays and travel, transport, mobility products, and daily living services for disabled people, their families and friends.

Jubilee Sailing Holiday

Adventure sailing holidays for able-bodied and disabled people.

Winged Fellowship Trust

The Winged Fellowship Trust is a national charity providing holidays for disabled and visually impaired people and breaks for carers.

 

Health Care & Rehabilitation

The International Spinal Injuries & Rehabilitation Centre

PATIENT CENTRED REHABILITATION The International Spinal Injuries & Rehabilitation Centre, housed at the Royal Buckinghamshire Hospital in Aylesbury, provides patient centred multidisciplinary rehabilitation programmes for patients with spinal injury, head injury, strokes and neurological conditions.

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